I just want to thank everyone for their sympathy. I also want to apologize to every one for not answering my phone. I will get back in contact with everyone as soon as I can handle it. I know many people have been concerned about us. This has been a rough time for our family. The hardest thing (that I didn't expect) is mourning Maya, then switching gears and celebrating Iris and her milestones. It's exhausting.
On Saturday the 17th Dustin and I decided to take Maya off her support and let her pass. I will spare every one the details of holding Maya and watching her take her last breath. It is nothing I would wish on anyone. Her Dr. was supportive in our decision. She said if Maya were her child she would do the same thing. Maya tolerated pneumonia, kidney disease. Then from all the fluid and pneumonia she ended up getting lung disease and a large cyst in her lung.
I have no more tears left to cry. My eyes are raw from rubbing them and my throat is sore.
The NICU here is set up in 3 levels...Level 3 is for the ones that need to most support, level 1 is for the ones getting ready to go home. Iris will be moved up to level 2 either tomorrow or the day after. She is growing and acting more and more like a baby. She cries when mommy puts her cold hands on her or plays with her feet. I love it! Iris is my reason for getting up and being strong. We will definately miss Maya and celebrate her short life.